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Conference Schedule

Conference schedule may be subject to change based on speaker availability, meeting space logistics, and other factors. A printed copy of the schedule will be provided to conference guests at check-in. You can also download this printable schedule

Please carefully review our COVID Testing Procedures before checking in to the conference.

Friday, July 14

6:00 PM - 9:00 PM

COVID Testing & Registration Materials Pickup                                   

Hotel Lobby
 

6:00 PM - 9:00 PM

Welcome Reception, including:                                                                    

  • Light Refreshments & Snacks

  • Human Bingo

  • Exhibit Fair

  • POTS Pals Sign-Up (18 & Under)

Luray Foyer

6:00 PM - 9:00 PM

Share Your Story Sign-Up

Interview Room
 

7:00 PM - 8:00 PM

Musical Guest: Shelby Blondell, Singer & Songwriter

Garden Terrace

 

8:00 PM - 9:00 PM

Dysautonomia Jeopardy!

Teen Room

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SHARE YOUR STORY!

We're inviting all conference guests to share their story on camera in the Interview Room, during three-minute interviews. What do you want the world to know about dysautonomia? What is your best advice for people who are newly diagnosed? How has dysautonomia impacted your life or your family? Interview footage will be used in Dysautonomia International awareness and education campaigns. Sign up for interview slots will be available at the Interview Room on Friday evening. Space is limited.

Saturday, July 15

 O = session to be recorded


8:00 AM - 5:00 PM

COVID Testing & Registration Materials Pickup

Hotel Lobby

8:00 AM - 10:00 PM

Quiet Seating Area with Salty Snacks & Hydration

Hospitality Suite

                                                  

9:00 AM - 5:00 PM

Exhibit Fair

Luray Foyer

 

9:00 AM - 9:50 AM
Opening Remarks
Speaker: Lauren Stiles, Dysautonomia International

Plenary: Overview of Autonomic Disorders
Speaker: Blair Grubb, MD, University of Toledo

Luray Ballroom

 

10:00 AM - 10:50 AM

Dysautonomia and Systemic Autoimmunity:

When to Look, How to Look, and What to Do

Speaker: Brent Goodman, MD, Mayo Clinic

O Luray Ballroom

 

Diagnosis & Management of POTS
Speaker: Satish Raj, MD, MSCI

Cirrus AB

 

Introductions & Ice Breaker Games

Host: Laura Seil Ruszczyk, MS

Teen Room

 

11:00 AM - 11:50 AM

Cerebral Hypoperfusion in Dysautonomias

Speaker: Peter Novak, MD, PhD, Harvard University

Luray Ballroom

 

Managing Sleep Dysfunction in Autonomic Disorders

Speaker: Alan Pocinki, MD, Private Practice

Cirrus AB

 

Thriving in School and Having a Social Life

with Dysautonomia

Panelists: Emily Birch, Katherine Hut, Daniel Kessler

Teen Room

 

12:00 PM - 12:50 PM

Using an Ear Device to Monitor Blood Flow to the
Head as a Dysautonomia Management Tool                  

Speakers: Daniel Lee, STAT Health

Marat Fudim, MD, Duke University

Luray Ballroom

 

Screening for Small Fiber Neuropathy in Dysautonomia
& Searching for an Underlying Cause                                                                

Speaker: Kamal Chémali, MD, Case Western Reserve University

Cirrus AB

 

Dysautonomia Scavenger Hunt
Host: Shannon Linford

Teen Room

 

12:50 PM - 2:00 PM

Lunch & Exhibit Fair

Seating available in the Luray Ballroom, Teen Room,

Hospitality Suite, Hotel Lobby and Garden Terrace

Luray Foyer

 

2:00 PM - 2:50 PM

Venous Disease and Dysautonomia,

Underdiagnosed and Misunderstood

Speaker: Alexis Cutchins, MD, Emory University

Luray Ballroom

 

Dysautonomia After COVID: What Should My Doctor Do?

Speakers: Liza Fisher, Dysautonomia International

Svetlana Blitshteyn, MD, Dysautonomia Clinic

Cirrus AB

 

Interactive Session: Sharing Our Best Dysautonomia Coping Strategies
Speaker: William Frye, PhD, Johns Hopkins All Children’s Hospital

Teen Room

 

3:00 PM - 3:50 PM

Research Updates on POTS
Speaker: Satish Raj, MD, MSCI, University of Calgary

O Luray Ballroom

  
Brain Fog: Cognitive Impairment and

Blood Flow in the Dysautonomia Brain

Speaker: Amanda Miller, PhD, Penn State Hershey

O Cirrus AB      
 

Dysautonomia Awareness Arts & Crafts

Hosts: Emily Birch & Shannon Linford

Teen Room

 

4:00 PM - 4:50 PM

Immunotherapy in POTS: The Johns Hopkins Experience
Speaker: Tae Hwan Chung, MD, Johns Hopkins University

Luray Ballroom                               

 

Every Breath You Take: Hyperpnea,
Hypocapnia, and POTS

Speaker: Glen Cook, MD, Walter Reed
National Military Medical Center

O Cirrus AB

 

Ask Abdallah Anything!
Speaker: Hasan Abdallah, MD,

Children's Heart Institute - Johns Hopkins Medicine

Teen Room

 

7:00 PM - 10:00 PM

Awards Banquet featuring appetizers, non-alcoholic

beverages, dinner, dessert, DJ with glow party, mirror
photo booth, and a silent auction. A cash bar will be

available for adults who wish to purchase beer, wine or liquor.

Luray Ballroom

 

8:00 PM - 10:00 PM

Karaoke (all ages welcome)

Teen Room

Sunday, July 16

 O = session to be recorded

 


8:00 AM - 4:00 PM

COVID Testing & Registration Materials Pickup

Hotel Lobby

9:00 AM - 4:00 PM

Quiet Seating Area with Salty Snacks & Hydration

Hospitality Suite

 

9:00 AM - 4:00 PM

Exhibit Fair

Luray Foyer

 

9:00 AM - 9:50 AM

Gastrointestinal Dysfunction and Dysautonomia:

The Role of the Neuroimmune Axis

Speaker: Laura Pace, MD, PhD, Metrodora Institute

O Luray ABC


Autonomic Function Testing: Defining the Type

& Severity of Autonomic Disorders

Speaker: Kamal Chémali, MD, Case Western Reserve University

Luray DEF


Vascular Compression Syndromes in Children & Young Adults With POTS
Speaker: Hasan Abdallah, MD, Children's Heart Institute -
Johns Hopkins Medicine

Cirrus AB

Research Update: Sexual Function in Adults with POTS

Speaker: Alana Lange, University at Buffalo Jacobs School of Medicine

Cirrus CD

 

10:00 AM - 10:50 AM

Medications for Autonomic Disorders

Speaker: Steve Vernino, MD, PhD, UT Southwestern

O Luray ABC

 

Anatomy of the Autonomic Nervous System: How Is It Supposed To Work?

Speaker: David Goldstein, MD, PhD, National

Institute of Neurologic Disorders & Stroke

Luray DEF

 

The POTS and AAG Experience at an Academic Hospital in Japan
Speaker: Shunya Nakane, MD, University of Toyoma

Cirrus AB

 

Research Update: Possible Genetic Markers for

Postural Orthostatic Tachycardia Syndrome

Speaker: Jeffrey Boris, MD, Jeffrey R. Boris, MD, LLC

Cirrus CD

 

Patient Presentations: Stories of Hope

Teen Room

11:00 AM - 11:50 AM

Alphabet Soup: Demystifying Autoantibodies, How They Are
Measured Clinically and What They Can and Cannot Tell Us

Speaker: Nora Singer, MD, Case Western Reserve University

Luray ABC

 

ADA Accommodations in the Workplace: Accommodations   
that Help and How to Get Them Implemented at Work                                      

Speaker: Sarah Diekman, MD, Diekman Dysautonomia, LLC

Luray DEF

 

Autoimmunity, Small Fiber Neuropathy, and Response
to Immune Therapies in Pediatric POTS

Speaker: Jeffrey Moak, MD, Children’s National Medical Center

Cirrus AB

 

11:00 AM - 11:30 AM

Ebb & Flow: Seated Yoga for When Life Shifts
Speaker: Liza Fisher

Cirrus CD


11:00 AM - 12:30 PM

Teen Program Pool Party (parents welcome)

Hotel Pool

11:50 AM - 1:00 PM

Lunch & Exhibit Fair

Seating available in the Luray Ballroom, Teen Room,
Hospitality Suite, Hotel Lobby and Garden Terrace

Luray Foyer

 

12:30 PM - 1:00 PM

Meet the Authors/Book Signing

Laura Seil Ruszczyk, MS & Sharon Roloff
Authors of the Dysautonomia Diary

Luray Foyer

1:00 PM - 1:50 PM

Strategic Systematic Approach to the Triad/Pentad/Septad Patient: EDS, Dysautonomia, Immune
Dysfunction & More

Speaker: Alissa Zingman, MD, P.R.I.S.M. Spine & Joint

O Luray ABC

 

Patient Presentations: Stories of Hope

Luray DEF


Autoimmune Derangement in Orthostatic Intolerant
Adolescents and Young Adults

Speaker: Mohammed Numan, MD, UT Houston

Cirrus AB

How to Harness Healing from our Habits: Using Lifestyle as Medicine
Speaker: Kara Wada, MD, Ohio State University

Cirrus CD

 

Teen Talk: Managing Overlapping Diagnoses in POTS
(EDS, MCAS, Migraine, and More)

Speaker: Jeffrey Boris, MD, Jeffrey R. Boris, MD, LLC

Teen Room

2:00 PM - 2:50 PM

Research Updates on POTS, Inappropriate Sinus
Tachycardia, and Long COVID Dysautonomia

Speakers:

Peter Novak, MD, Harvard University
David Saunders, MD, MPH, Uniformed Services University

Luray ABC


Parent Workshop: How to Parent Complex Chronic
Illness Kids with Grace, Hope and Humor

Speakers:

Barbara Granoff, MSW

Shira Strongin

Luray DEF

                                                               

Synucleinopathies & Dysautonomia

Speaker: Paola Sandroni, MD, PhD, Mayo Clinic

Cirrus AB

 

Building Your Dysautonomia Tool Kit

Speaker: Chiersten Luettinger, Dysautonomia International

Teen Room

 

3:00 PM - 3:50 PM

Q&A with the Experts and Closing Remarks

Luray ABC

 

4:00 PM - 5:00 PM

Dysautonomia Advocacy Day Training

This session is only for registered Advocacy Day guests.

Luray DEF

Monday, July 17

A schedule for Dysautonomia Advocacy Day will be provided to participants at the Sunday night training.

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