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DysConf2024 Agenda

Please see the CME course agenda for the CME lecture topics/speakers.

Please note all Teen Room programs are for guests aged 18 and under, unless otherwise noted.
All times are in Central Time (Chicago). Schedule subject to change/speaker availability.

*=session will be recorded

^=session will be live broadcast

FRIDAY, JUNE 28, 2024

6:00 PM - 9:00 PM
Registration Materials Pickup
Artist Hallway

6:00 PM - 9:00 PM

POTS Pals Sign Up for Teens
Artist Foyer

6:00 PM - 7:00 PM  

Welcome Reception - light refreshments & snacks
Artist Foyer    

7:00 PM - 8:00 PM  

Speed Networking    
Cassat Ballroom  

7:00 PM - 8:00 PM  

The Hydration Olympics
Electrolyte Pong, Flip Cups, Truth or Drink - all games played with hydrating electrolyte beverages.
Teen Room (all ages)

7:00 PM - 9:00 PM

Karaoke 
Artist Foyer

SATURDAY, JUNE 29, 2024

8:00 AM - 5:00 PM  
Registration Materials Pickup  
Artist Hallway  

8:30 AM - 9:00 PM  
Quiet Seating Area with Salty Snacks
Hospitality Suite          

9:00 AM - 9:05 AM  
Welcome Remarks     
Speaker: Lauren Stiles, JD, Dysautonomia International    

Avedon Ballroom *^  

9:05 AM - 9:50 AM
Plenary: Overview of Autonomic Disorders  
Speaker: Dr. Blair Grubb, University of Toledo  
Avedon Ballroom *^  

10:00 AM - 10:50 AM  
Ehlers-Danlos Syndrome and Hypermobility in Autonomic Disorders: Implications for Diagnosis & Treatment
Speaker: Dr. David Saperstein, Center for Complex Neurology, EDS & POTS
Avedon Ballroom*^

Overview of Baroreflex Failure    
Speaker: Dr. Paola Sandroni, Mayo Clinic
Cassatt Ballroom 

Ice Breaker Games    
Hosts: Emily Birch & Madison Horowitz, Dysautonomia International  
Teen Room 

11:00 AM - 11:50 AM
Overview of Autoimmunity in POTS & Current Research
Speaker: Dr. Tae Chung, Johns Hopkins
Avedon Ballroom*^

Overview of Familial Dysautonomia  
Speaker: Dr. Ken Shaw, FD Now  
Cassatt Ballroom

Hydration Science: Make Your Own Electrolyte Drinks
Speaker: Jillian Myers, MSA, APRN-NP, CPNP-PC, Lurie Children’s Hospital  
Teen Room

12:00 PM - 2:00 PM
Lunch & Vendor Fair
Artist Foyer  

2:00 PM - 2:50 PM  
New Vascular Research Findings in POTS & Implications for Treatment            
​Speaker: Dr. Alexis Cutchins, Emory University
Avedon Ballroom*^      

Research Updates: Long Term Outcomes in Adult POTS and Compression Garments, Do They Really Work?
Speaker: Dr. Kate Bourne, University of Calgary (virtual presentation)
Cassatt Ballroom*

It's Not All In Your Head: Building a Chronic Illness Coping Skills Toolbox  

Speaker: Cara McGowan, Dysautonomia International
Teen Room

3:00 PM - 3:50 PM  
Research Update: Vagus Nerve Stimulation Using the IB-Stim Device in Pediatric POTS & EDS
Speaker: Dr. Katja Karrento, Medical College of Wisconsin  
Avedon Ballroom*^

Diagnosing & Treating Neuropathic Pain in Autonomic Disorders
Speaker: Dr. Glen Cook, Walter Reed National  Military Medical Center (virtual presentation)
Cassatt Ballroom*

DysConf2024 Scavenger Hunt    
Hosts: Shannon Linford & Jade Horvath,  Dysautonomia International  
Teen Room

4:00 PM - 4:50 PM
Glymphatics & Dysautonomia    

Speaker: Dr. Brent Goodman, Metrodora Clinic  
Avedon Ballroom*^ 

Co-morbidities and the Role of Patient Reported Outcomes in POTS/OI - Insights from the Patient's Perspective       
Speaker: Dr. John Fortunato, Lurie Children’s Hospital  

Cassatt Ballroom  

How Occupational Therapy Can Help with Dysautonomias   
Speaker: Emily Rich, M/OT, OTR-L, Tucson Medical Center

Teen Room  

5:00 PM - 6:00 PM  
Poster Session        
Please join us to view dozens of research posters on dysautonomia and related conditions. Patients are invited to vote for their favorite research poster to help us determine the winner of the “Patients’ Choice Award," which will be announced during the Awards Banquet.  
Artist Hallway    

6:00 PM - 9:00 PM  
Awards Banquet
Brief Awards ceremony, buffet dinner and dessert, followed by trivia games.    
Avedon Ballroom  
   
Photo Booth & Silent Auction    
Artist Foyer          

SUNDAY, JUNE 30, 2024

8:00 AM - 4:00PM  
Registration Materials Pickup    
Artist Hallway      
     
8:00 AM - 9:00 PM  
Quiet Seating Area with Salty Snacks
Hospitality Suite  

9:00 AM - 9:50 AM
Diagnosis & Treatment of Mast Cell Disorders in Dysautonomia Patients  
Speaker: Dr. Jim Harris, The EDS Clinic
Avedon Ballroom*^

The Physiology of POTS
Speaker: Dr. Satish Raj, University of Calgary  (virtual presentation)  
Cassatt Ballroom*

Dysautonomia Awareness Arts & Crafts      
Host: Alli Howells, Dysautonomia International    
Teen Room  

10:00 AM - 10:50 AM
Dissecting the Interaction between Dysautonomia, Hypermobility & Mast Cells in Eosinophilic Esophagitis
Speaker: Dr. Joshua, Wechsler, Lurie Children’s Hospital  
Avedon Ballroom*^

Concussion Management in the Dysautonomia Population
Speaker: Dr. Craig Coleby, Granger Medical  
Cassatt Ballroom*

Stories of Hope & Recovery    

Speakers: Alli Howells, Dr. Sarah Diekman, &  Alex Bahram
Teen Room

11:00 AM - Noon  
Research Updates: Oral Abstracts  

​Authors of selected research posters will be invited to present brief oral abstracts explaining their research findings.
Avedon Ballroom*^ and Cassatt Ballroom*    
 
Ask the Docs Anything!
The Docs: Pediatric Dysautonomia Specialists Dr. Jeff Boris & Dr. John Fortunato  
Teen Room

Noon - 1:00 PM    
Lunch & Vendor Fair    
Artist Hallway  

1:00 PM - 1:50 PM  
Role of the Gastrointestinal Tract in the Neuroimmune Axis and Implications for Diagnosis & Treatment 
Speaker: Dr. Laura Pace, Neurogastroenterologist
Avedon Ballroom*^

Hormones, Pregnancy & Sexual Function in Dysautonomia
Speaker: Dr. Svetlana Blitshteyn, University at Buffalo
Cassatt Ballroom*

Gentle Floor Yoga 
Host: Brittany Holst, Lurie Children’s Hospital
Teen Room

2:00 PM - 2:50 PM
Long Term Outcomes in Adolescent POTS  
Speaker: Dr. Jeffrey Boris, Jeffrey Boris, MD, LLC  
Avedon Ballroom*^      

ech Innovations in Dysautonomia Care: Tracking Blood Flow to the Head with an In-Ear Wearable       
Speakers: Dr. Amanda Miller, Shivani Ugrin &  Daniel Lee, STAT Health 
Cassatt Ballroom*

How to Advocate for Yourself    
Speakers: Shannon Linford & Emily Birch,  Dysautonomia International  
Teen Room

3:00 PM - 4:00 PM
Closing Session: Audience Q&A with the Experts
Avedon Ballroom*^ 

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