Conference Schedule
Conference schedule may be subject to change based on speaker availability, meeting space logistics, and other factors. A printed copy of the schedule will be provided to conference guests at check-in. You can also download this printable schedule.
Please carefully review our COVID Testing Procedures before checking in to the conference.
Friday, July 14
6:00 PM - 9:00 PM
COVID Testing & Registration Materials Pickup
Hotel Lobby
6:00 PM - 9:00 PM
Welcome Reception, including:
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Light Refreshments & Snacks
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Human Bingo
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Exhibit Fair
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POTS Pals Sign-Up (18 & Under)
Luray Foyer
6:00 PM - 9:00 PM
Share Your Story Sign-Up
Interview Room
7:00 PM - 8:00 PM
Musical Guest: Shelby Blondell, Singer & Songwriter
Garden Terrace
8:00 PM - 9:00 PM
Dysautonomia Jeopardy!
Teen Room
SHARE YOUR STORY!
We're inviting all conference guests to share their story on camera in the Interview Room, during three-minute interviews. What do you want the world to know about dysautonomia? What is your best advice for people who are newly diagnosed? How has dysautonomia impacted your life or your family? Interview footage will be used in Dysautonomia International awareness and education campaigns. Sign up for interview slots will be available at the Interview Room on Friday evening. Space is limited.
Saturday, July 15
O = session to be recorded
8:00 AM - 5:00 PM
COVID Testing & Registration Materials Pickup
Hotel Lobby
8:00 AM - 10:00 PM
Quiet Seating Area with Salty Snacks & Hydration
Hospitality Suite
9:00 AM - 5:00 PM
Exhibit Fair
Luray Foyer
9:00 AM - 9:50 AM
Opening Remarks
Speaker: Lauren Stiles, Dysautonomia International
Plenary: Overview of Autonomic Disorders
Speaker: Blair Grubb, MD, University of Toledo
O Luray Ballroom
10:00 AM - 10:50 AM
Dysautonomia and Systemic Autoimmunity:
When to Look, How to Look, and What to Do
Speaker: Brent Goodman, MD, Mayo Clinic
O Luray Ballroom
Diagnosis & Management of POTS
Speaker: Satish Raj, MD, MSCI
O Cirrus AB
Introductions & Ice Breaker Games
Host: Laura Seil Ruszczyk, MS
Teen Room
11:00 AM - 11:50 AM
Cerebral Hypoperfusion in Dysautonomias
Speaker: Peter Novak, MD, PhD, Harvard University
O Luray Ballroom
Managing Sleep Dysfunction in Autonomic Disorders
Speaker: Alan Pocinki, MD, Private Practice
O Cirrus AB
Thriving in School and Having a Social Life
with Dysautonomia
Panelists: Emily Birch, Katherine Hut, Daniel Kessler
Teen Room
12:00 PM - 12:50 PM
Using an Ear Device to Monitor Blood Flow to the
Head as a Dysautonomia Management Tool
Speakers: Daniel Lee, STAT Health
Marat Fudim, MD, Duke University
O Luray Ballroom
Screening for Small Fiber Neuropathy in Dysautonomia
& Searching for an Underlying Cause
Speaker: Kamal Chémali, MD, Case Western Reserve University
O Cirrus AB
Dysautonomia Scavenger Hunt
Host: Shannon Linford
Teen Room
12:50 PM - 2:00 PM
Lunch & Exhibit Fair
Seating available in the Luray Ballroom, Teen Room,
Hospitality Suite, Hotel Lobby and Garden Terrace
Luray Foyer
2:00 PM - 2:50 PM
Venous Disease and Dysautonomia,
Underdiagnosed and Misunderstood
Speaker: Alexis Cutchins, MD, Emory University
O Luray Ballroom
Dysautonomia After COVID: What Should My Doctor Do?
Speakers: Liza Fisher, Dysautonomia International
Svetlana Blitshteyn, MD, Dysautonomia Clinic
O Cirrus AB
Interactive Session: Sharing Our Best Dysautonomia Coping Strategies
Speaker: William Frye, PhD, Johns Hopkins All Children’s Hospital
Teen Room
3:00 PM - 3:50 PM
Research Updates on POTS
Speaker: Satish Raj, MD, MSCI, University of Calgary
O Luray Ballroom
Brain Fog: Cognitive Impairment and
Blood Flow in the Dysautonomia Brain
Speaker: Amanda Miller, PhD, Penn State Hershey
O Cirrus AB
Dysautonomia Awareness Arts & Crafts
Hosts: Emily Birch & Shannon Linford
Teen Room
4:00 PM - 4:50 PM
Immunotherapy in POTS: The Johns Hopkins Experience
Speaker: Tae Hwan Chung, MD, Johns Hopkins University
O Luray Ballroom
Every Breath You Take: Hyperpnea,
Hypocapnia, and POTS
Speaker: Glen Cook, MD, Walter Reed
National Military Medical Center
O Cirrus AB
Ask Abdallah Anything!
Speaker: Hasan Abdallah, MD,
Children's Heart Institute - Johns Hopkins Medicine
Teen Room
7:00 PM - 10:00 PM
Awards Banquet featuring appetizers, non-alcoholic
beverages, dinner, dessert, DJ with glow party, mirror
photo booth, and a silent auction. A cash bar will be
available for adults who wish to purchase beer, wine or liquor.
Luray Ballroom
8:00 PM - 10:00 PM
Karaoke (all ages welcome)
Teen Room
Sunday, July 16
O = session to be recorded
8:00 AM - 4:00 PM
COVID Testing & Registration Materials Pickup
Hotel Lobby
9:00 AM - 4:00 PM
Quiet Seating Area with Salty Snacks & Hydration
Hospitality Suite
9:00 AM - 4:00 PM
Exhibit Fair
Luray Foyer
9:00 AM - 9:50 AM
Gastrointestinal Dysfunction and Dysautonomia:
The Role of the Neuroimmune Axis
Speaker: Laura Pace, MD, PhD, Metrodora Institute
O Luray ABC
Autonomic Function Testing: Defining the Type
& Severity of Autonomic Disorders
Speaker: Kamal Chémali, MD, Case Western Reserve University
Luray DEF
Vascular Compression Syndromes in Children & Young Adults With POTS
Speaker: Hasan Abdallah, MD, Children's Heart Institute -
Johns Hopkins Medicine
O Cirrus AB
Research Update: Sexual Function in Adults with POTS
Speaker: Alana Lange, University at Buffalo Jacobs School of Medicine
Cirrus CD
10:00 AM - 10:50 AM
Medications for Autonomic Disorders
Speaker: Steve Vernino, MD, PhD, UT Southwestern
O Luray ABC
Anatomy of the Autonomic Nervous System: How Is It Supposed To Work?
Speaker: David Goldstein, MD, PhD, National
Institute of Neurologic Disorders & Stroke
Luray DEF
The POTS and AAG Experience at an Academic Hospital in Japan
Speaker: Shunya Nakane, MD, University of Toyoma
O Cirrus AB
Research Update: Possible Genetic Markers for
Postural Orthostatic Tachycardia Syndrome
Speaker: Jeffrey Boris, MD, Jeffrey R. Boris, MD, LLC
Cirrus CD
Patient Presentations: Stories of Hope
Teen Room
11:00 AM - 11:50 AM
Alphabet Soup: Demystifying Autoantibodies, How They Are
Measured Clinically and What They Can and Cannot Tell Us
Speaker: Nora Singer, MD, Case Western Reserve University
O Luray ABC
ADA Accommodations in the Workplace: Accommodations
that Help and How to Get Them Implemented at Work
Speaker: Sarah Diekman, MD, Diekman Dysautonomia, LLC
Luray DEF
Autoimmunity, Small Fiber Neuropathy, and Response
to Immune Therapies in Pediatric POTS
Speaker: Jeffrey Moak, MD, Children’s National Medical Center
O Cirrus AB
11:00 AM - 11:30 AM
Ebb & Flow: Seated Yoga for When Life Shifts
Speaker: Liza Fisher
Cirrus CD
11:00 AM - 12:30 PM
Teen Program Pool Party (parents welcome)
Hotel Pool
11:50 AM - 1:00 PM
Lunch & Exhibit Fair
Seating available in the Luray Ballroom, Teen Room,
Hospitality Suite, Hotel Lobby and Garden Terrace
Luray Foyer
12:30 PM - 1:00 PM
Meet the Authors/Book Signing
Laura Seil Ruszczyk, MS & Sharon Roloff
Authors of the Dysautonomia Diary
Luray Foyer
1:00 PM - 1:50 PM
Strategic Systematic Approach to the Triad/Pentad/Septad Patient: EDS, Dysautonomia, Immune
Dysfunction & More
Speaker: Alissa Zingman, MD, P.R.I.S.M. Spine & Joint
O Luray ABC
Patient Presentations: Stories of Hope
Luray DEF
Autoimmune Derangement in Orthostatic Intolerant
Adolescents and Young Adults
Speaker: Mohammed Numan, MD, UT Houston
O Cirrus AB
How to Harness Healing from our Habits: Using Lifestyle as Medicine
Speaker: Kara Wada, MD, Ohio State University
Cirrus CD
Teen Talk: Managing Overlapping Diagnoses in POTS
(EDS, MCAS, Migraine, and More)
Speaker: Jeffrey Boris, MD, Jeffrey R. Boris, MD, LLC
Teen Room
2:00 PM - 2:50 PM
Research Updates on POTS, Inappropriate Sinus
Tachycardia, and Long COVID Dysautonomia
Speakers:
Peter Novak, MD, Harvard University
David Saunders, MD, MPH, Uniformed Services University
O Luray ABC
Parent Workshop: How to Parent Complex Chronic
Illness Kids with Grace, Hope and Humor
Speakers:
Barbara Granoff, MSW
Shira Strongin
Luray DEF
Synucleinopathies & Dysautonomia
Speaker: Paola Sandroni, MD, PhD, Mayo Clinic
O Cirrus AB
Building Your Dysautonomia Tool Kit
Speaker: Chiersten Luettinger, Dysautonomia International
Teen Room
3:00 PM - 3:50 PM
Q&A with the Experts and Closing Remarks
Luray ABC
4:00 PM - 5:00 PM
Dysautonomia Advocacy Day Training
This session is only for registered Advocacy Day guests.
Luray DEF
Monday, July 17
A schedule for Dysautonomia Advocacy Day will be provided to participants at the Sunday night training.